Welcome!
- Location
- London, England 51.52-0.1
- Meetups
- 19 so far
- Members
- 17 People With Achalasia
- Meetup topics
- Founded
- February 14, 2008
Meetup for support with other local sufferrers and survivors of the esophageal disorder, Achalasia. Achalasia is diagnosed when the esophagus is less able to move food toward the stomach and the valve from the esophagus to the stomach does not relax as much as it needs to during swallowing.
Our next MeetupThe London Achalasia November Meetup
- Where?
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This location is shown only to members
- Who’s coming?
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2 Yes / 0 Maybe( 8 spots left )
No agenda as will be informal
More upcoming Meetups
This group doesn't have any additional upcoming Meetups scheduled.
Past Meetups
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1 attended
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5 attended
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2 attended
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2 attended
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1 attended
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1 attended
Join The London Achalasia Meetup
What's new?
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Aug 18
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New Greeting for“hello! I have just joined the group as I was desparate to speak to people with experiences of achalasia as the doctors don't seem to understand the full symptoms. I have just had my first balloon dilatation and have experienced very severe chest and neck pain which are thought to be oesophagus spasms and would like to know if anyone else has experienced similar pains and how they have overcome them I am taking tramadol but they leave me feeling spaced out! Any suggestions??”posted by claire
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New Greeting for“Hi Anna, just joined the group as fed up of trying to explain condition and symptoms to the doctors as well as people! I was diagnosed 2 years ago although I suspect I have had achalasia for alot longer. I then fell pregnant with my third child so could not proceed with any treatment and eating did become progressively difficult during pregnancy. I have just had the balloon dilatation and am experiencing severely painful spasms. have you experienced these pains?”posted by claire
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Aug 17
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New member
“Hi I'm claire a 33 year old mum of three. I got diagnosed about two years ago, however I suspect that I have had achalasia for much longer. I have just had my first balloon dilatation and would like to learn from other peoples experiences!!”
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Aug 2
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New Greeting for“I had the same thing- pregnancy made the swallowing part difficult, so then i was diagnosed”posted by louisa humphreys
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New member“I have achalasia diagnosed 18 year ago when i was pregnant. I would like to get support and share info from other people with the same condition”
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Jun 23
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New Greeting for“Welcome to the achalasia meetup group. What is the operation you are having on the 8th July? I have managed my achalasia through a change in diet and lifestyle which seems to work for me at the moment. Whether that is the right thing to do in the long term, I will have to wait and see. Others in the group have had various interventions such as botox, balloon dilation and Heller's myotomy There are a few of us meeting on Saturday as someone else is newly diagnosed and is facing an operation.”posted by amanda ladell
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Jun 22
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New member“i have my opp on the 8 july just trying to learn from other suffer's experience”
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May 9
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New member
“Had a barium swallow in Jan and they suspect I have Achalasia. Became pregnant in Feb and started finding it hard to swallow last June. Symptoms have progressively got worse. Would really like to meet other people that are suffering.”
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May 5
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New member
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Apr 21
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New Greeting for“We have just had another informal meeting with five of us this time, including someone else from Hertfordshire. We are planning to have another meeting in August/September time in Central London and I hope you'd like to join us. I have found the meetings a great source of support and have enjoyed the exchanging of ideas and experiences. Let me know if you are interested. Amanda”posted by amanda ladell
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New member“Hi, My name is meena and i have had achalasia for 4 years and i just want to meet people with the same condition and share their experiences.”
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Asst. Organizers:
What members are saying
“ If you are feeling alone with this condition or need to share your feelings/thoughts .....as this is a rare condition and so good to identifiy with others. ”
“ The more people join the group the more info and experiences we can share. It's great to have support from others that understand what you're going through. ”